Once a year, Citizen Science Zürich awards Seed Grants for the development and/or implementation of participatory citizen science projects. Teams of academic researchers and citizens can apply for up to 40'000 CHF. For 2023, the selection committee of Citizen Science Zurich has decided to fund six projects around animal welfare, sustainability and health – two of them were applied by IfIS:
Collaboration between patients, family members, and researchers: A co-designed mixed-methods evaluation of user engagement and partnership in health research:
In Switzerland, involving patients, family members, and the public (users) in health research, which is also known as patient and public involvement (PPI), is becoming more common. However, evaluating how users and researchers collaborate within research studies itself has not yet received much attention. This project is part of the FICUS study (Family Support Intervention in Intensive Care Units), which is funded by the Swiss National Science Foundation, and investigates the ability of a family support program in intensive care units to increase quality of care, strengthen family coping with serious illness and trauma, and reduce negative impact on family members’ mental health.
The project was developed and will be co-led by the members of the FICUS patient and family advisory board and researchers.
The inclusion of Caregivers in Participatory Implementation and Evaluation Science in neonatal care – Care PartIES:
In Switzerland, survival rates of babies born prematurely, with low birth weight and/or critical conditions have been growing in the past decades. Accordingly, an increasing number of babies require neonatal intensive care just after being born. From an implementation science perspective, the effectiveness of clinical practices highly depends on involved groups. Despite parents’ critical role in neonatal care, they are usually not included in the planning stages of research.
In the participatory research project „Care-PartIES“ researchers and parents with experience in neonatal intensive care will work closely together with the overarching long-term goals of establishing an ongoing collaborative to set an agenda and prioritization of topics for participatory research as well as building long-term partnerships with caregiver citizen partners.